A person in my extended circle lost their battle with depression. Thinking about them and about my own battle put me in an very introspective headspace.
I wrote that quite a while ago and then got stuck. It is so hard to articulate all the emotions I’m feeling. Plus so many incidents in my personal life slammed me.
On the good side, my goods are selling! Dragon Wolf Crafts I also managed to enormous task of vending/dealing at a conference. Along with my OSO, we sold enough to cover the cost of the table. Not quite enough to cover the cost of food and gas. It was a great learning experience and we both are eager to try again. I’m learning a lot about marketing and promotion. More than I ever really wanted to know. But it’s also sort of fun. In a way. If you tilt your head just right. I’m deeply happy that I’ve found a way to pursue my passion for sparkly. Plus with reading more poetry during National Poetry Month, I’m finding words spooling loose from my soul.
On the other side. Frankly, I am uncertain about my home life and the future. The partner that I live with is going through a lot of changes right now. I understand it and am as supportive as I am able. However, they are also volatile. Though now that I think back over nearly 24 years, this isn’t much of a change. I guess I’m too damn broke and tired to cope well anymore. We are both in therapy. I’m hope they get the help they need. My therapist is encouraging me to take a break. Just go somewhere and chill. The stress is making my health issues worse.
Speaking of which, still haven’t been able to get an appointment with the neurosurgeon. I have to steel myself to call my insurance and find another candidate and then contact my doctor to let her know. Then wait for the referral to the new person is approved and then call or wait for them to call me to make an appointment. ~sigh~ I’m trying a CBD cream to help with the pain in the meanwhile.
In addition, YouCaring has been bought by GoFundMe so if I want to continue begging desperately for money from folks, I’ll have to create a whole new campaign before July 31. I do still need help. Even though I’m selling things, it’s very much not enough at this point to sustain myself. I need room to breathe and get this well and truly a thing. The shop is the best thing I ever did for my mental health. If only I can get my physical health on an upswing, I’d take that campaign down and start paying it forward.
Argh! Now I’m frustrated with myself for being a burden on the world. Will go do music therapy and make things with stones.
Been spiralling down and only really noticed today when I said to myself “I want to die”. My usual quiet voice just wants to no longer exist. This is different. I’m feeling really hopeless. I had issues getting my meds due to my change of insurance and a mix-up because of the change. Plus, a charge dinged my bank account that made me overdrawn by over $100. I did get the charge reversed though. And I did get my meds finally after dancing through the automated system at the insurance company and then put on hold until a real person finally spoke with me. I’m still undecided about the disability thing. It’s more than I can cope with. I did finally get a positive-ish response from a therapist but that’s another phone call. Can’t handle this.
I need to go see the dentist. And I need new glasses (had my eyes checked and my eyes continue to age which means a new, stronger prescription).
I can’t get to sleep at night. And then I wake up feeling groggy and tired. Getting out of bed is a chore. But my furry babies need food and my bladder still works. My back pain has gotten worse and that makes sleeping or sitting difficult.
I can’t stop that negative tape except briefly when listening to music or making stuff. But sitting long enough to make means back and leg pain (different chairs, cushions haven’t helped).
After a long cold and stressful trip to KC to visit my partner’s family, I return and promptly came down with a bad cold or maybe the flu that’s running rampant. I’m still recovering. Then early yesterday, my uterus betrayed me. I woke up at O dark thirty with a red tide. ~sigh~ Then today…not a damn thing. Though I did go out and re-stocked up on menstrual stuff. It had been over 100 days since I had a period. So reset and hope for 365 days so I can officially be in menopause and hopefully, one day, be post-menopausal.
Haven’t made a decision on exactly what to do about my disability denial yet. Being feverish was not helping with my decision making skills. Need to gear up and produce many pretty beaded things for my Etsy store though. Hoping folks will want to start shopping soon for Valentine’s Day.
I’ve made some decisions about where I want to be by the end of this year and how to get there but I’m not ready to really talk about it publicly.
I need to get my kittens to the vet for checkups. So anything you can toss my way would be awesome. Also, I have follow-ups myself with the nephrologist and my primary care doc and the dentist. But I have new insurance so I may not have copays and my meds should be a little less expensive. I think. I hope so. Or I could be screwed and not able to see my specialists. Guess I’ll find out! Yay.
Guess my mental health hasn’t improved much since I can only focus on the worst scenarios. Except I can go hunting for a therapist with my new insurance and hopefully get that stuff under better control. Yay.
For a long time, my memories of my childhood were vague and felt very, very distant. In part because I actively shied away from fully remembering. I’ve spoken of being raped when I was nine years old. However, as I approach 50, I find myself remembering happy times and a loving family. Memories of great adventures with cousins, large family gatherings and celebrations, church family, friends at school and in the neighborhood; all crowding forth in my mind lie whispers. It has moved me to look at the one family photo album that I managed to salvage after my mom’s death. So many great snapshots that made me smile and laugh. I want it back. I want it all back: the fun, the struggle, the pain, the love. All of it shaped who I am today.
I have reached out and reconnected with some family and friends on social media and will continue in my efforts. I’m enjoying seeing these amazing people and learning about who they are now. I really hope to return to NC sometime in 2018 to see them in person.
I feel like I was missing a part of me and now I am working to reclaim it. To make myself whole. Yes, it includes some really painful and sad parts but it also includes some really amazing, happy and loving parts as well.
To my friends and family, please share stories with me. I may not remember them all clearly but the more I hear, the more I remember and the more I feel myself.
Today I spent five hours sitting in a waiting room at the local DES office. It was crowded and noisy. Filled with all types of people: adults, singles, couples, parents with children. All there because we are desperate and needy. I saw dirty, unkempt people. And neat, clean people. And all those in between. I saw people lugging all of their wordly belongings to this place in hopes of maybe getting help.
As well, I saw parents entertaining their kids. Trying to make this long, often humiliating process a bit less trying and boring. I saw people helping people. Explaining the process to those new to it. Encouraging worn down parents with fussy kids.
By the end, I felt as though I’d joined a fellowship of a sort. I have a shiny new EBT card so I can now buy food and take some of the burden off my partner.
Sitting there, I was reminded of my childhood when we had to go check in with the government and assure them that no, we had not suddenly come into money and yes, we did still need food assistance. Food insecurity is a terrible way to live. Back then, we had actual color coded packets of vouchers. It was embarrasing to go shopping and pull those out. At least with the card, you don’t stand out as much.
I sat in my car for a moment and felt…something..nothing. I am dependent. Dependent on my partner. Dependent on my friends. Dependent on the meager services provided by the government. Dependent.
Medical stuff. Seriously. Trying to get healthy is exhausting. And expensive. Why? And now Congress is trying yet again to make it harder and exclude people like me from even getting the bare minimum health care coverage.
So after my fun diagnosis, I went to get blood drawn for more tests. It was like 8 or 10 vials! So I felt a bit run down after all of that blood left my body. But my nephrologist is being thorough so I should be glad. He’s checking for Lupus and I think trying to get a more precise diagnosis of my kidney disease.
I’m researching renal diets. And my partner got me an instant pot for my birthday to make it easier for me to cook real food. Yay! There’s a lot of information out there and it’s taking me some time to sort through it all. I suspect I’ll end up consulting with a nutritionist. sigh
I still need to find a therapist. I called a couple of people and found out they were not taking new patients. I also need to get my eyes checked. Oh, and the dentist.
In better news, I did submit an appeal for disability. Now I have to worry myself sick with waiting for a decision. I’m actually hoping I can just let it ride and not fret about it every damn day. But that’s not how my brain works. Anyway.
I got to see my wolfcub! So that was a happy. He gave me a pretty!
He’s making many pretties to sell. I’ll let you know where you can get yours.
I feel like I’m waiting, waiting, waiting. The requested evals are done. So I am waiting for some strangers in an office not too far from here to decide if I am broken enough to receive disability.
I am seeing pictures from my friends at Pennsic and my friends travelling to Worldcon and I am wistful. I want to travel. I want to dress up in funny clothes and have magical encounters.
I miss my Nia. She’s haunting my dreams. I hope she’s okay. Yes, I’ve tried to contact her but I have heard nothing back. I worry, too, about my friend Beth. I miss, as well, those friends and acquaintances from all of the places I’ve lived and visited over the years.
Worry is my old friend. I fret, as usual, about money. I fret about being useless. I couldn’t even hold the coffee carafe to fill it this morning. I had to use two hands. I had a spurt of activity feeding the critters (birds and kitties). I fed myself too. But then I was tired, tired. I just want a nap.
Or I want to be elsewhere. Or maybe someone else. My 25 year old self, maybe. Or in a different universe where I stayed in NC. Or finished my degree and did good things for humanity. Or never left Tucson. Or ran off to join a commune.
I hate, hate, hate having to ask others for help all the time. I remember when I was the one able to lend a hand. Buy a meal or run an errand.