There are moments when all the doctor’s appointments and all the tests and all the scans are just overwhelming. I want a D&D cleric who could heal me with a prayer. Or a potion.
My veins are rebelling from all the sticks. It takes a skilled phlebotomist to get it right with one poke. Otherwise, they have to chase my rolling veins or poke elsewhere. Right now, I have a very slight bruise from the IV I had to get for a CT scan of my neck. I don’t think I will ever get used to the feel of the contrast through my body.
I have two new specialists to go see. I’m sure they will each want some blood work done. ~sigh~
I’m getting a biopsy of a node on my thyroid next Tuesday. The day before we leave for Worldcon 76 in San Jose. I’m very excited about the convention. Looking forward to seeing old friends and maybe making new friends. Totally not looking forward to the biopsy.
I hope with each exam and blood work and scan that there will be answers. It feels like my life is just an endless stream of medical stuff.
I’m just so tired.
A person in my extended circle lost their battle with depression. Thinking about them and about my own battle put me in an very introspective headspace.
I wrote that quite a while ago and then got stuck. It is so hard to articulate all the emotions I’m feeling. Plus so many incidents in my personal life slammed me.
On the good side, my goods are selling! Dragon Wolf Crafts I also managed to enormous task of vending/dealing at a conference. Along with my OSO, we sold enough to cover the cost of the table. Not quite enough to cover the cost of food and gas. It was a great learning experience and we both are eager to try again. I’m learning a lot about marketing and promotion. More than I ever really wanted to know. But it’s also sort of fun. In a way. If you tilt your head just right. I’m deeply happy that I’ve found a way to pursue my passion for sparkly. Plus with reading more poetry during National Poetry Month, I’m finding words spooling loose from my soul.
On the other side. Frankly, I am uncertain about my home life and the future. The partner that I live with is going through a lot of changes right now. I understand it and am as supportive as I am able. However, they are also volatile. Though now that I think back over nearly 24 years, this isn’t much of a change. I guess I’m too damn broke and tired to cope well anymore. We are both in therapy. I’m hope they get the help they need. My therapist is encouraging me to take a break. Just go somewhere and chill. The stress is making my health issues worse.
Speaking of which, still haven’t been able to get an appointment with the neurosurgeon. I have to steel myself to call my insurance and find another candidate and then contact my doctor to let her know. Then wait for the referral to the new person is approved and then call or wait for them to call me to make an appointment. ~sigh~ I’m trying a CBD cream to help with the pain in the meanwhile.
In addition, YouCaring has been bought by GoFundMe so if I want to continue begging desperately for money from folks, I’ll have to create a whole new campaign before July 31. I do still need help. Even though I’m selling things, it’s very much not enough at this point to sustain myself. I need room to breathe and get this well and truly a thing. The shop is the best thing I ever did for my mental health. If only I can get my physical health on an upswing, I’d take that campaign down and start paying it forward.
Argh! Now I’m frustrated with myself for being a burden on the world. Will go do music therapy and make things with stones.
So I’ve been trying to figure out how to write about my current load of issues. So much has happened since I last posted anything. I did find a therapist who is wonderful. I am very optimistic that she’ll be a big help in my journey to better mental health.
I’ll need it because my physical health is…well, not so great. My follow-up with the nephrologist was rescheduled by that office until next month. My labs show a slight decrease in kidney function so I really need to consult with him. My primary care doc continues to be my champion. One of my labs is elevated which indicates either liver impairment or something else. I had follow-up labs this week and it’s not my liver. I will be seeing a hematologist next week to try to figure out what the heck is going on. Unfortunately, I spent time consulting with Dr. Google and now I’m all freaked out. There is a chance of bone disease of some type including perhaps, cancer. So there’s that.
Speaking of bones, I now know why my back hurts all the time. I have a bulging disc and degenerative disc disease. Yay me. I’m waiting to hear back from the neurosurgeon’s office about an appointment.
How am I coping? ~sigh~ Well, music therapy helps some. Today I’ve been rearranging the house which has also helped. I’ve asked for support from friends (go me! actually asking) and they’ve been wonderful. I am reminding myself to take things one step at a time. Cope with the bits that I am able and don’t sweat the what-ifs. I’ll have more information soon enough and can then decide how to handle things.
For a long time, my memories of my childhood were vague and felt very, very distant. In part because I actively shied away from fully remembering. I’ve spoken of being raped when I was nine years old. However, as I approach 50, I find myself remembering happy times and a loving family. Memories of great adventures with cousins, large family gatherings and celebrations, church family, friends at school and in the neighborhood; all crowding forth in my mind lie whispers. It has moved me to look at the one family photo album that I managed to salvage after my mom’s death. So many great snapshots that made me smile and laugh. I want it back. I want it all back: the fun, the struggle, the pain, the love. All of it shaped who I am today.
I have reached out and reconnected with some family and friends on social media and will continue in my efforts. I’m enjoying seeing these amazing people and learning about who they are now. I really hope to return to NC sometime in 2018 to see them in person.
I feel like I was missing a part of me and now I am working to reclaim it. To make myself whole. Yes, it includes some really painful and sad parts but it also includes some really amazing, happy and loving parts as well.
To my friends and family, please share stories with me. I may not remember them all clearly but the more I hear, the more I remember and the more I feel myself.
On my rollercoaster ride of depression, I’m currently at a very, very low point. I was finally able to connect with a therapist and my first session is tomorrow. So there’s that. I’ve been either sleeping too little or too much. For the past several days, I’ve not been able to talk myself into getting out of bed until the afternoon. I feel so useless. Like why bother going through the motions. I’ve been eating either way too little or too much of the wrong things.
Still waiting on a decision on my disability. Meanwhile, I need food, gas, pet supplies. All of my bills are overdue. I have no answers for the nice folks that keep calling me about them or sending me letters or email. Many of my clothes don’t fit anymore. It’d be nice to have a pair of orthopedic slippers for around the house. It’d be nice to go to a movie.
I’ve been trying to read or listen to music but that’s not really working on my anxiety. It helps for a little while. And I guess those small moments will have to do for now. My dreams are full of all kinds of anxiety induced monsters.
I am hoping that therapy will help. Except I am anxious about the added expense on top of everything else. But I know I need the help. But I will continue to fret.
As always, if you can help, here is my YouCaring page: A Helping Hand
And my PayPal
Over the past few days, I have received so much support and generosity. I am humbled and frankly stunned to see how much my community, my chosen family, my tribe truly cares. Not just about me. I have seen beautiful expressions of support and love. I have teared up many times.
Y’all keep my hope a living, breathing thing. I am deeply grateful to each of you.
I am depressed. I haven’t blogged about it or really written very explicitly about it in quite some time. It’s because I’m in a truly dark place and depression lies. It lies and tells me that no one cares, no one wants to hear about my feelings/struggles. It tells me that people are tired of my constant struggles with depression and finances and my whining about my life when obviously I have many good things.
I am worried and stressed and my depression lies and tells me that I’m being stupid/silly. Any problem I have is my own fault and I should just *fix* it already. I’m not sleeping or eating well (this is very bad due to my eating disorder past and I know it but my depression tells me that it doesn’t matter).
My depression tells me that everyone around me would be better off if I disappeared from the world entirely. That ceasing to exist would be a vast improvement to my current state of uselessness.
I’m wrestling with it, the darkness, my old friend, my depression brain. I’m trying a new antidepressant but it hasn’t had a chance to kick in yet. I’m applying music therapy and playing silly games and trying, trying, trying to shut out the noise, the lies. I’m mostly managing to get out of bed everyday so there’s that.
A Helping Hand fundraiser
Paypal donation link